Tuesday, December 3, 2013

40 and the miracle of 8

Saturday 30 November 2013

Life began yesterday.

What a great couple of days – who knew that turning 40 could be so much fun!

Little S has been on form throughout – I spent the morning of my birthday watching her Chanukah show at nursery where, surprise, surprise, as part of ‘8 doughnuts in the baker’s shop’ she toddled across the room to take a doughnut from her teacher right on cue.

Then lunch with her and J, followed by a bike ride in the afternoon and a l’chaim of whiskey and doughnuts at the synagogue on Friday evening.

And, on Saturday night, a cocktail bar (and barman) in the lounge, an 80’s playlist that took me right back to student days and a house packed full of wonderful friends and family!

Little S was so excited!

Although she was asleep by the time the party kicked off, and she missed the sushi and more doughnuts, she was dancing around the lounge whilst we were putting up decorations and grinning from ear to ear – gorgeous!

But of course it’s not just my birthday, it’s also Chanukah – 8 days of stories, lights, hope and miracles.

Rabbi Jonathan Sacks teaches that one of the miracles of Chanukah – that time in history where the Jewish people fought and won against the mighty Greek empire in order to retain their freedom and way of life; when the oil for the menorah that was left in the desecrated Temple in Jerusalem, which was only enough for one day, lasted for the eight days it took to replenish the oil from the olive trees of the Galilee – one of the miracles was that, in the depths of despair, the Jewish people did not lose hope. Not then, and not in the thousands of years since, to the extent that Hatikvah (the hope) is the national anthem of Israel.

As Little S’s nursery song goes One little candle, one little candle, one little candle burning bright!

Sometimes one candle can be enough.

Na’aseh Nes La’Shoshanim.

65 and 74

Monday 11 November 2013

Little S was feeling a bit under the weather, suffering from a bad cold for the previous week or so, more lethargic than usual and not as smiley as normal, so we had a feeling that when we went to GOSH her sats might be a bit down and she might not quite be her usual sparkly self.

Well her sats were definitely down, down to 65% which isn’t good even for Little S.

Dr D was concerned.

He began discussing the shunt connecting her heart to her reconstructed pulmonary artery - highlighting the possibility that it may no longer be delivering enough oxygen.
If so, they may need to use a balloon to expand the artery as part of a catheterisation procedure.
He was fairly sure that this would need to happen at some point but was hoping, I think, that it might not be for a little while yet as any procedure carries risks, especially whilst undergoing heart failure.

We weren’t convinced.

He seemed to think that her sats had been in decline for a few months but we were pretty sure that they’d been stable at about 70% since the spring.

So we decided to get a community nurse to visit on a weekly basis to take Little S’s sats and check whether they would recover once she gets over her bug (J also though that they may have not measured sats properly at GOSH this time).

Little S also had to have a blood test which she wasn’t best pleased about although the problem was much more about putting on the anesthetic cream and plaster than actually sticking a needle in and taking the blood! The nurses ended up using cling film instead of a plaster which seemed to do the trick.

Before the community nurse turned up we thought we’d get hold of our own sats monitor so that we could check ourselves.

So I ordered one from Amazon – seemed to have good reviews and be suitable for toddlers but when we tried it out, although it worked fine for J and me it went haywire when trying to measure Little S!

Thankfully the community nurse had better luck and a week after going to GOSH, Little S had recorded 73%.

She’d pulled it off again – another recovery.

And next week she got 74%, her best score since leaving hospital last New Year’s Eve!

The black cloud had scuttled away again, settling back onto the horizon.