Summer's gone, day's spent with the grass and sun
...
Wake up it's a beautiful morning,
The sun shining for your eyes.
Wake up it's so beautiful,
For what could be the very last time.
The Boo Radleys – Wake Up Boo
It's been a glorious Summer -
lazy days, holidays, rock pools,
sunshine, cycling, swimming, playing,
on the beach, in the pool,
seaside, countryside,
laughs, giraffes,
friends, family, walking, talking ... fishing!
and wishing it would never end - but it does.
Little S has been amazing throughout the summer -
loving being outdoors, swimming lots and generally having a great time!
loving being outdoors, swimming lots and generally having a great time!
She's laughed, scooted, danced and grown -
she's a big girl now, going into the 'rising fours', the oldest kids in the nursery.
she's a big girl now, going into the 'rising fours', the oldest kids in the nursery.
But this is a time of year that is always a time of transition -
a new school year begins,
the holidays come to an end and wonderful experiences become memories,
the Jewish new year approaches with its focus on reflection on the past year and resolutions for the year ahead,
work somehow becomes a bit more serious as everyone tries to knuckle down and get things done,
the evening skies start to darken and the weather becomes more inclement.
It all feels like the fun and colour of summer is changing to darker autumn days.
a new school year begins,
the holidays come to an end and wonderful experiences become memories,
the Jewish new year approaches with its focus on reflection on the past year and resolutions for the year ahead,
work somehow becomes a bit more serious as everyone tries to knuckle down and get things done,
the evening skies start to darken and the weather becomes more inclement.
It all feels like the fun and colour of summer is changing to darker autumn days.
It certainly feels that way with Little S.
After months of being able to not worry too much about her condition and just loving spending time together, we now have to turn our mind to the prospect of a catherisation procedure in the next month or two - needed to improve the flow of oxygen to her heart whilst she is still in a generally healthy state.
Normally a catheter would be a low risk job -
keyhole incision,
insert some dye,take some detailed pictures,
insert a balloon, inflate an artery or a conduit added during previous surgery,
but with Little S the stakes are higher -
her heart's not doing so well,
so if things don't go according to plan,
she might have a hard time recovering.
But it needs to happen -
without it her sats are going to get worse,
whilst with it they may get a bit better for a while
and could possibly put her in a place where she could undergo further, much needed, surgery.
So darker days -
but Autumn is not Winter
In Autumn, greens turn to reds and golds
In Autumn, nature builds up her strength to prepare for long Winter months
In Autumn, leaves fall so that trees can bloom again
Monday 15 September
A visit to GOSH: sats 72%, cath Oct 14
We're going to need to talk to Little S about what's going to happen to her.
Over the Summer she asked me:
'Did you have meds when you were three?'
I replied:
'Sometimes, and I take meds nowadays as well'
Because all three year olds take meds - otherwise, why wouldn't older brother J and older sister T be also taking meds every day?
That's bound to be a much easier question to answer than something like: 'What's going to happen to me today?'
keyhole incision,
insert some dye,take some detailed pictures,
insert a balloon, inflate an artery or a conduit added during previous surgery,
but with Little S the stakes are higher -
her heart's not doing so well,
so if things don't go according to plan,
she might have a hard time recovering.
But it needs to happen -
without it her sats are going to get worse,
whilst with it they may get a bit better for a while
and could possibly put her in a place where she could undergo further, much needed, surgery.
So darker days -
but Autumn is not Winter
In Autumn, greens turn to reds and golds
In Autumn, nature builds up her strength to prepare for long Winter months
In Autumn, leaves fall so that trees can bloom again
Monday 15 September
A visit to GOSH: sats 72%, cath Oct 14
We're going to need to talk to Little S about what's going to happen to her.
Over the Summer she asked me:
'Did you have meds when you were three?'
I replied:
'Sometimes, and I take meds nowadays as well'
Because all three year olds take meds - otherwise, why wouldn't older brother J and older sister T be also taking meds every day?
That's bound to be a much easier question to answer than something like: 'What's going to happen to me today?'
