Sun 27 Nov
Little S has always been a bit feisty - her nickname is 'wiggles' as she is always wiggling around - and she has been putting her desire for life to good use whilst in hospital - refusing to give in until she's able to do what she wants to do again.
Little S has also always been a happy, jolly baby - lots of smiles and laughing - far from the baby in the CICU that was either asleep or crying with discomfort or pain.
Even the crying wasn't normal - whilst she has the breathing tube down her nose and throat, she's not able to use her vocal cords so she cries but no sound comes out - it's heart-rending to see as a parent: your baby crying in terror but no sound.
The nurses gave her various medicines to calm her down and keep her sedated - I'd assumed that we wouldn't even see her awake until the next day - but Little S wasn't having any of it - when we returned on Saturday morning we were told that she had kept waking up during the night despite the morphine that they kept pumping into her!
Although it left her tired and in pain we tried to see it as a positive: Little S doesn't give up - whatever gets thrown at her!
All of the doctors and nurses (and Martin K the surgeon) have been really pleased with how she's been doing - 'better than expected' and 'feisty' were used on more than one occasion.
And now, after just two days on CICU, she's getting moved on the Ladybird ward - most of the tubes are out (including the breathing tube and the horrible chest drain) and they've even disconnected the medication tubes from the central line in her neck (although they've left the actual line in for the moment) and she's almost back to a smile!
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