Monday 12 August 2013
This time we were at GOSH with both Little S and her big
sister T.
Little S was great, almost enjoying herself – not even
complaining about the ECG and the Echo that she has to ensure – there was no blood test so
that probably put her in a better mood!
And having T around was also fun, especially since the
waiting area has a Wii with Mario Kart on it!
Little S weighed in at 12 kg and managed to come up with 74%
for her sats, higher than most previous visits.
We were seen by a different consultant to normal – hopefully
another sign that Dr D sees that there is not much to worry about at the moment
– although Dr D did pop in to say hello and to let us know that the previous blood
tests yielded a BNP of 13,000, much lower than the 30,000 that Little S
recorded at the start of the year. Dr D doesn’t get particularly excited about
BNP levels but it was another small chink of light, another glimmer of hope.
And they’ve upped one of the medicines now (Captopril) from
0.5 ml slowly up to 1.0 ml, basically because Little S is growing up and
getting bigger!
So we come back in three months now – daring to hope in the
meantime that Little S stays as healthy and happy as she currently is.
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